The background to my blog

It all started at a routine vision test 21 months ago, when the optician noticed my eyes were ‘wobbly’. I’d had twitchy eyelids, but apart from that this was just a yearly, routine check-up. As a child I’d had strabismus which is a misalignment of the eyes. Some people have an eye that deviates inwards and some with the condition have an eye that deviates outwards. There are also upward and downward deviations. I have Esotropia, where the eye turns inwards slightly. Apart from a few months of ‘patching’ I hadn’t needed any more investigations or treatment, and was discharged from the eye clinic aged 5.

At the hospital where I had my referral appointment, they told me the wobbles are caused by a condition called nystagmus. I was a little worried, as you would be, but they said perhaps was born with the nystagmus because I seem to ‘cope with it very well’, and the coping mechanisms are often leaned in childhood. Nevertheless, they agreed they would see me in the hospital again for a review, as this was the first time nystagmus had ever been noticed in my eyes, despite yearly sight checks. So the review would be to check if the condition was stable, or showing signs of worsening.

Published by Claire

In my 30s, married with 2 kiddos. I have a few eye conditions - Trochlear nerve palsy (CN IV), Nystagmus and Ocular Torticollis. Plus a few other Neurological symptoms that may or may not be connected. I've started this blog to document my struggles whilst I try to find the underlying cause. I hope to connect with others going through the same things, but until I know what that is, my blog will be a mish mash of random symptoms. Please subscribe and interact with my posts :-)

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