The waiting game…

The 3-month review turned in to 8 months, and after many voicemails chasing them up, I was finally offered another appointment. It was a different doctor this time and he agreed I’d been waiting a long time and said it was about time my eyes are sorted out. Great, I thought. I’m getting somewhere! However, before he could refer me to the specialist he (or the orthoptist) has to have taken a full set of eye tests, which they’d forgotten to do. So, three months later I’m called in for another review. I see the orthoptist, who now mentions my (recent) diagnosis of hypertropia strabismus is possibly caused by a congenital nerve palsy. I now have diagnosis’s of Esotropia, hypertropia caused by a congenital fourth nerve palsy and nystagmus. At this point they still believe I was born with these conditions, so there is no rush to investigate, but they are referring me to a specialist at another (larger, more specialised) hospital. I’m hoping the new hospital will investigate and get to the bottom of what’s going on with my vision. ‘You were more than likely born this way’ doesn’t reassure me at all. I just hope the new hospital don’t have any more medical conditions to throw in the mix, I can’t keep up!.